Karina Chaikhoutdinov
Age: 21
New York
In Spring 2008, I graduated from
Brooklyn
College, in Brooklyn, NY,
with a BA in Art and minor in English. My passion in art includes,
first and foremost, photography, as well as drawing, graphic design, and
painting. A BA in Art is not much in today's art industry, which is
why I eventually hope - in the not-to-distant future - to earn an MFA in
Advertising. Because, when I grow up, my goal is to work at an
advertising agency and design for the entertainment industry, such as movie
posters and CD/DVD labels and covers. I greatly enjoy watching movies
and learning the technical aspects of the industry, so it would be a dream
come true to be able to design the art that captures the mystery of a film.
I also enjoy reading, writing poetry, started a novel I'll probably never
get finished, and have recently discovered I have a talent for writing
plays.
My disability is Fibrodysplasia Ossificans Progressiva (FOP), which is when
muscles form into bone, and connective tissue generate an extra skeleton
that immobilizes the body. The extra bone in FOP forms by a
progressive transformation of soft tissue into cartilage and bone.
Bone regenerates after a fracture by this same process. The
abnormality in FOP occurs not in the manner of bone formation but rather in
its timing and location. The degree of disability varies from
individual to individual and can begin developing at any rate at any given
time, so there are no two people with FOP who are or have been at the same
physical stage; only the symptoms are similar. FOP affects my daily
life a great deal, as I need help with everyday tasks able-individuals take
for granted, but, with it's progression since infancy, I have learned to
depend on myself for the little things, and, as a result, have become a
stronger and more determined person.
I began self advocacy-volunteering for the New York State Department of
Health (NYS DOH) in Spring 2007. Through NYS DOH I got involved with
KASA in Spring 2008, and continue to serve as a member on both youth
advisory boards.