Download this National Kids As Self Advocates Document (pdf: 47K | doc: 81K) www.fvkasa.org
·
Begin planning long before
you actually need to switch. That
way, you will not be rushed when the time comes and you will have plenty of time
to get to know your new doctor and health care team.
·
Ask your current doctor if
she or he has any recommendations, suggestions for a good adult doctor, for you.
You have probably been seeing your doctor for a while and she or he knows
you and may know of a good ‘fit’.
·
Create a description with
your current doctor explaining in a clear way, what your disability is.
Including a list of major surgeries, treatments and current medication. This way
you understand what you need the new doctor to know, and YOU can explain it to
them.
·
Make sure your new doctor
and health care team have experience working with others with your disability
and/or health care needs. If that is
not possible ask your current doctor for good resources so that the new doctor
can learn about your disability from helpful accurate information.
·
When you have a new doctor in mind, see if you
can schedule a time to meet with him or her and ask questions. Use this
opportunity to share your personal dreams and goals, so that you and your new
team can be clear about how you expect to live your life and make sure that they
will be there to support your choices.
·
When you have chosen a new doctor, make sure to
have your medical records transferred, before your first visit.
·
Remember, you have the right to privacy and can
talk with your doctor alone (without your parents) if you need to.
RESOURCES
Transition to
Adulthood—Contacts to Consider
http://depts.washington.edu/healthtr/Timeline/adulthood.htm
This is part of the Adolescent health transition Project, part
of the Center on Human development and Disability at the
Healthy & Ready to
Work
www.hrtw.org/healthcare/hth_care.html